“An invaluable resource for empowering parents.” 

- Elizabeth R. Jalazo, M.D., Pediatrician and parent of a medically complex child 

 

“A must read for parents with a child suffering a significant medical disease.” 

- Emil D. Kakkis, M.D., Ph.D., CEO, Ultragenyx, Rare Disease Expert 

 

“A groundbreaking guide for families facing medical challenges.” 

- Mark Dant, Chairman, Board of Directors of The EveryLife Foundation for Rare Diseases and parent to a child with a rare disease  

 

“Extremely useful for any parent facing a medical ‘journey’ with their child. Real-life experience and professional expertise to provide practical, sensible guidance and tools for parents.”

- Nancy Kassam Adams, PhD, Director, Center for Pediatric Traumatic Stress, Children’s Hospital of Philadelphia 

 

“Helpful, compassionate and important book that should change the way health care is provided to children." 

- Susannah Fox, former Chief Technology Officer for the U.S. Department of Health and Human Services 

 

“Every parent and health professional impacted by medical trauma in children should read this gem of a book.”  

- Steven A. Webber, MBChB, MRCP, Chair, Department of Pediatrics, Monroe Carell Jr. Children's Hospital at Vanderbilt 

  

“This book will serve not only as an essential resource for parents and families, but also for the whole community of care givers who strive to help children with medical trauma every day.” 

- Steven A. Webber, MBChB, MRCP, Chair, Department of Pediatrics, Monroe Carell Jr. Children's Hospital at Vanderbilt