Mother and Advocate Joins Leading Pediatric Psychologist to Pen First-of-its-Kind Book for Parents
Book aimed at equipping parents with the knowledge and skills to successfully support their children through medical challenges, and specifically with medical trauma and anxiety
NASHVILLE – (May 10, 2021) Being heralded as a ‘groundbreaking guide for families facing medical challenges,’ the new book, Afraid of the Doctor: Every Parent's Guide to Preventing and Managing Medical Trauma, is the product of two mothers who have both experienced – and become experts on – childhood medical trauma in vastly different ways. Medical trauma describes the emotional and physical responses to pain, injury, serious illness, medical procedures, and frightening treatment experiences and is often under-recognized and overlooked in the healthcare system.
Melissa Hogan, J.D., is the mother of three, whose youngest son was diagnosed with Hunter syndrome as a toddler. She has spent the last decade navigating difficult medical appointments, researching, blogging and becoming an expert on rare diseases such as the one affecting her son. In 2014 she left her career as a health care attorney and was among a group of parents who founded Project Alive, the leading non-profit focused on supporting treatments, cures, and advocacy for Hunter syndrome.
Meghan Marsac, Ph.D., is a pediatric psychologist and a tenured Associate Professor at the University of Kentucky and Kentucky Children’s Hospital. She is a leader in the field of pediatric medical trauma, having published more than 60 academic articles on this topic and founding the Cellie Coping Company to provide evidence-based tools for emotional support for children with medical conditions. Her primary professional goal is to improve the experience of living with medical conditions for children and families.
Medical trauma and experiences in healthcare can profoundly affect a child’s response and willingness to even go to the doctor. “When my child was first diagnosed, I found very few tools and no books for parents. I felt very alone,” Hogan said. “This is the book I wish I’d had. It has the information and the tools I needed to help my child. I was so excited to reach out to Meghan and bring together the perspectives of both a parent and a psychologist to help families.”
When parents understand medical trauma and learn strategies to reduce and even prevent it, they become empowered to better care for their child’s emotional and physical health. The book could not be timelier considering the COVID-19 pandemic and the medical fears it is causing in both children and parents. After more than a year of lockdowns, virtual learning, mask wearing and social distancing, some children may have a traumatic experience adjusting back to “normal.”
“We wanted to be able to give the kids and the families I work with every day the resources to help them manage their medical experience and walk their physical health journey and their mental health journey together,” Marsac said. “One of my primary goals is to make medical care better for kids and families, so that’s why we came together and wrote this book.”
Endorsed by the Child Neurology Foundation, Afraid of the Doctor is the first book written for parents with the primary goal of equipping them with the knowledge and skills to support their children through medical challenges, and specifically with medical trauma and anxiety.
Early praise for the book has come from medical experts who tout the need for the book including the Chief Medical Officer at WebMD, the pediatrics chair at Monroe Carrell Jr. Children’s Hospital at Vanderbilt, the director of the Center for Pediatric Traumatic Stress at Children’s Hospital of Philadelphia, the genetic counselor for the Rare Disease Program at Cincinnati Children's Hospital Medical Center and others.
“Afraid of the Doctor addresses one of the most difficult topics any parent has to face, which is an ill child with critical health needs. Hogan and Marsac’s book is a readable roadmap and instruction manual for any parent trying to get medical care for their child while also caring for their child’s own emotional health,” writes Emil D. Kakkis, M.D., Ph.D., CEO of Ultragenyx and a rare disease expert. “This is a must read for parents with a child suffering a significant medical disease.”